Speech/Language Coffee Talk

Speech coffee talks will provide an informal opportunity to learn more about how cleft palate can effect a child’s speech and language development and resources in the community to address your child’s needs


September 29, 2016

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"My life began January 2012 when I was told I was pregnant after trying for over 10 years. At my 24 week ultra sound I was told my son was going to be born with a cleft lip and palate. Like all parents we were deathly afraid but it wasn't going to stop my excitement. He was a healthy baby besides his cleft lip.
June 27, 2013 at 3:39pm my world was born. Colton he was perfect 8 pounds 4 ounces. We took him home 3 days later and our journey began. September 30, 2013 he had his lip repair and then May 26, 2014 his palate repair, they also placed ear tubes. He's 3 years old now very healthy, no ear tubes and perfect speech. The only issues cleft related is dental, my poor little man has already had a tooth pulled and 4 caps. But it could be way worst so I'm thankful everyday!

I have been through the ringer with my cancer. It all started in February 2015 with weight loss in a small period of time. But I didn't have any other symptoms. So I ignored my body.. In May is when I started to feel extreme pain in my left shoulder, I went to every kind of doctor you can think of. Not one of them could tell me what was wrong at this point, I was even accused of lying to get pain pills and drug tested. In June I started to get even more sick and was throwing up yellow mucus. I decided to see another doctor who FINALLY scanned my lungs! That's when they found my tumor. 😩 long story short they told me I had classical Hodgkin lymphoma. My battle was suppose to be a breeze. One chemo for 6 months and remission!!! But it ended up being a nightmare. My cancer became mutated and what they call a grey area lymphoma which is rare.

I'm also considered to be refractory which means a disease or condition which does not respond to (or is resistant to) cancer treatment. Refractory cancer is also known as resistant cancer. Which give me a very difficult chance of beating what I have. My percentage to live is very low also if the doctors can't control my tumor from growing I could have months to live.

So far I have had 6 chemo regiments, 26 rounds of chemo, 3 lung biopsies, and 1 bone marrow biopsy, I have lost count of hospital and Doctor visits. I lost my hair, eye lashes and eye brows. I started my battle over a year ago and I'm no closer to being in remission or having a stem cell transplant like planned.

I'm not telling you my story for you to feel sorry for me. I'm telling you my story to raise awareness about lymphoma and most of all cancer. Cancer doesn't care what age you are, race or religion whether your a mom, dad, brother, sister, aunt, uncle grandma or grandpa. If your body is telling you something different and you think something might be wrong go to a doctor, do not settle on what they think. If you KNOW something's wrong push for an answer.

In my heart I know I will beat my cancer, I know there is a reason for me to be tested whether or not I can handle this fight! But.. If I don't make it. Know one thing, everyday of every hour of my life was amazing. I brought into this world with some help 😉 a beautiful little boy, I made memories with them and I loved them more than anything in this entire world. At the end of the day no matter what happens my family and friends will be so proud of me for fighting my ass off.
I know cancer can take a hard toll on you physically and mentally. I know there's days were you feel like dying would be a lot easier. But from personal experience never give up and never give in! Live life to its fullest and have someone to always talk to!

I have a huge support system but most of all God blessed me with a little boy who is a warrior himself. He's been through surgeries, shots and a lot of doctor appointments and wakes up everyday happy with a huge smile on his face. Colton keeps me alive every second of everyday. I will fight for my cleft cutie I have to continue educating people about the cleft community and stop any form of bullying. "
~Melinda and Colton Bly
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