General Resources

AboutFace
About Face aims to facilitate emotional, peer and social support, resources, educational programs and public awareness for and on behalf of individuals with facial differences and their families.

American Cleft Palate Craniofacial Association
The American Cleft Palate-Craniofacial Association (ACPA) is an international non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face. The members of ACPA serve an extremely important role in the management of children and adults with cleft lip, cleft palate, and craniofacial anomalies. For over 65 years, their goal has been to provide optimal care for this group of patients and their families.

AmeriFace
The mission of AmeriFace is to provide information and emotional support to individuals with facial differences and their families and increase public understanding through awareness programs and education.

Children’s Craniofacial Association
Children’s Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.  Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.  CCA’s mission is to empower and give hope to individuals and families affected by facial differences.

Cleft Lip and Palate Young Adult
A Facebook group for young adults with cleft lip and palate to be able to share their feelings, thoughts and experience. It is also a place for parents of children with cleft lip and palate to be able to learn from young adults with clefts about their experiences.

Cleft Palate Foundation
The Cleft Palate Foundation (CPF) is a 501(c)(3) nonprofit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects. It was founded by the American Cleft Palate-Craniofacial Association in 1973 to be the public service arm of the professional Association.

Cleft Lip and Palate Foundation of Smiles
The Cleft Lip and Palate Foundation of Smiles seeks to educate and bring awareness to others around the world whose lives are touched by cleft lip and or/ palate and other craniofacial anomalies by providing support, education, advocacy and research. A mother to twins both born with cleft lip and palate founded the organization as a community for families going through similar challenges.

Clefty’s~ Bringing Wide Smiles Wide Open
Clefty’s, an online program providing support and resources for families affected by cleft lip and palate, was founded by a mother of a son with a bilateral cleft lip and palate.  Clefty’s Facebook group offers an interactive platform for families to ask questions, share pictures, provide encouragement and share experiences.

March of Dimes Foundation
The March of Dimes Foundation seeks to improve the health of babies by preventing birth defects, premature birth and infant mortality. Additionally, March of Dimes provides mothers, pregnant women and women of childbearing age with educational resources on baby health, pregnancy, preconception and new motherhood, as well as supplying information and support to families affected by prematurity, birth defects, or other infant health problems.

Kid’s Health
Health, fitness, food, drugs, alcohol, disease, infection, safety, sexual health, and mental health are covered here.  Includes detailed informational sections on cleft lip and palate for parents, kids, and and teens.